scarfman: (me)
[personal profile] scarfman

You may know Thursday night I tweeted:

Friday afternoon in my wife’s hospital room we were visited by the doctor who’s the director of palliative services for the healthcare system our doctors and hospital are part of. A month ago when she was in the hospital, a couple of reps from that department visited us and suggested it was time to start preparing for when she needed to go into skilled care permanently and switch away from aggressive cancer treatment to keeping her comfortable for the end of her time. The director of the department came to see us Friday to suggest that that time has come.

We were reluctant to hear this so we decided to ask my wife’s physician and her oncologist for their opinion. They each stopped by my wife’s room Monday, coincidentally at the same time, and did concur with what the palliative doctor said.

Right now she’s still in the hospital because they’re still diagnosing and determining treatment for the tremors that put her in the ER last Thursday. But they've asked us to choose a skilled care center tomorrow morning, which she almost certainly won’t be coming home from.

Date: 2014-06-18 05:47 am (UTC)
ext_22548: (rogue)
From: [identity profile] cmattg.livejournal.com
Oh,man. I can't imagine what it's like to make a decision like that. My mother went through something like that with her father,
and the only thing I'm sure of is, it was harder than anything I've ever seen her do.

I'm not even sure how to wish you well, beyond, "I hope things go as best they can."

Date: 2014-06-18 05:47 am (UTC)
From: [identity profile] rose-cat.livejournal.com
I'm so sorry you and your wife are having to come to terms with this :( I hope you still have a lot of quality time together.

Date: 2014-06-18 01:33 pm (UTC)
billroper: (Default)
From: [personal profile] billroper
I'm sorry, Paul.

Date: 2014-06-18 02:42 pm (UTC)
From: [identity profile] capriuni.livejournal.com
Oh, hell.

*hugs*

Date: 2014-06-18 03:48 pm (UTC)
pedanther: (cheerful)
From: [personal profile] pedanther
I'm sorry to hear it. Y'all are in my thoughts.

Date: 2014-06-18 08:57 pm (UTC)
From: [identity profile] fearlessfirefly.livejournal.com
I'm so sorry. My thoughts are with you and your wife through these hard times.

Date: 2014-06-19 12:59 am (UTC)
From: [identity profile] hergrace.livejournal.com
Oh Paul, I am heartbroken that y'all are having to go through this. I will be keeping you both in thoughts and prayers.

Date: 2014-06-19 01:35 am (UTC)
From: [identity profile] acmespaceship.livejournal.com
Damn. What a hard thing to process. I can say this: every person I've known who faced this decision felt very much better -- physically and emotionally -- after shifting the focus over to palliative care. Many said they wished they'd done it sooner. I don't know any major decision that has a more unanimous endorsement.

As one of the culprits who stole your eyeglasses from a Chambanacon hotel room snog those many years ago, I knew you two would get on well together. Little did I know, that was a massive under-estimation. You're both magnificent. All my love from Chicago.

Date: 2014-06-19 05:20 pm (UTC)
From: [identity profile] alienfish.livejournal.com
Ah. Oh dear. I am so sorry.

Date: 2014-06-22 01:17 am (UTC)
From: [identity profile] trinalin.livejournal.com
So sorry to read this. I do hope, as acmespaceship said that, once palliative care comes into the picture, that you and she will have some peace of mind. Good luck to you both during this awful time.

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